Sunday, August 1, 2010

Sunday Evening Whine

The Neupogen shots are kicking my butt. When I saw my doctor on Wednesday I told him that I didn't get the Neulasta after my last chemo. It's a shot that helps my body make white cells. So he gave me 5 vials of Neupogen, which does the same thing. The Neulasta is easier, though, because you only have to have one shot. But you have to have it within 24 hours of the chemo. I didn't realize that I didn't get it until it was too late.

My doc warned me that the Neupogen can cause bone and joint pain, and said that sometimes people can't even walk it hurts so much. As usual, I was sure I wouldn't get that pain. I never think I'm going to get the bad side effects other people get. But I did. It's the worst pain I've had so far during these treatments. I can control it with Tylenol Arthritis every 8 hours, but I have to remember to take it before the pain starts. Yesterday I wasn't hurting after 8 hours, so I waited and wound up miserable for several hours.

Today is the last shot (I've been giving them to myself at night before bed), thank goodness! So this hasn't been the good weekend that I thought it would be. I didn't get to spend much time with my sister, and I'm missing dinner with Ron's nephew and his family right now. I did make it to Mass, though. I couldn't stand the thought of missing again, so we went and I did okay.

Hope your weekend has been better than mine!

Photo Credit


Jennifer Mulkey said...

Am so sorry that the Neupogen is causing such pain :( I had the shots after chemo. I ended up using some Lortab for the pain. It seemed mine always ended up in my right leg and hip for some reason, and I couldn't get comfortable at night with it, and I had to lay on my back because my port was on my left side and it hurt regardless of which side I tried, so I laid flat on my back for six months...hated it, but I made it through. Do you run a fever with yours? I always did. One more treatment :) Hang in there, we are all rooting and praying and lifting you up to God :) I know you are in His hands and He is taking such good care of you :) Just think, you are being perfected with all of the pain and suffering and stress you are going through. It's not only helping you, but it's helping so many others that you might never meet or know. From something so awful as cancer, Our Lord creates opportunities to spread His Grace, through us....what a miracle that is :) God Bless and I hope you get a good night's sleep tonight. Your guardian angel is there with you constantly and I've put mine on guard just in case you need him for anything, he has my permission to fly to your side, to do whatever he can, and then to fly back to me. :)

Kalona said...

Jennifer, you're always a blessing to me! Thank you for sharing your guardian angel with me. Last night I had taken my pain med at 6:15, so I needed to wake up at 2:15 AM to take the next dose and I had left my cell phone downstairs and didn't want to go get it (for the alarm). I've been sleeping in the spare room and there's no alarm in there. So I said, "I need to wake up at 2:15 to take my pill." And I woke up at 2:14! I think my guardian angel woke me.

You are so right about Our Lord using even the suffering of having cancer for something good in our lives. I have a hard time explaining it to others sometimes, but i know you understand exactly how I feel. I pray that my puny sufferings might be used by Him for souls. (And I know they are helping me to atone for sin).

I'm sorry you had such long lasting pain during your chemo. I would have a hard time having to lie flat on my back to sleep! I don't think I've had any fever with the bone pain.

After I finish the 6th treatment, my doctor will turn me over to the transplant team. I'm sure he will continue to follow along, but he won't be my main doctor during the transplant phase. I'll miss him!

Thank you for you comment. I'll let your angel know if I need him. Hugs!

Anonymous said...


Jennifer Mulkey Thank You! I hope you read this. Sharon is my big sis and I am so grateful for the blessing of wonderful loving people that hold her in prayers and uplift her with your faith. Thank you for showing love and compassion & sharing at this time when she is going through such a battle. She is amazing & I am so grateful to our Lord for her & her amazing witness to the love she has for Him and her faith.

I love you Sharon! Hugs, Sandi

Angela M. said...

Prayers continue! It makes me sad that you are hurting but I will offer that up! How blessed we are to be Catholic and have all these graces at our disposal!

Jennifer Mulkey said...

Hugs back :) And Kalona, if you ever feel like not answering my notes, please feel free not to. I remember that sometimes I just didn't feel like talking to anyone, I didn't feel like sharing, like talking about it, I just wanted to be left alone. I was like Marlena Deitrich..."I vant to be left alone" So, if you feel that way at any time, please don't think I would take offense. I would completely understand :) Sounds like your guardian angel was right by your side all night long :) I know I felt the presence of mine several times. I knew he was there, and he was diligent :) So glad you have that comfort of knowing he's there watching over you. :)

God Bless,

Kalona said...

Thanks, Sandi, that was sweet.

Angela, thank you for your continued prayers. The pain is much better today; I'm being careful to take my pain meds before I need them rather than waiting too long! Yes, blessed to be Catholic is exactly how I feel.

Jennifer, I've definitely had times when I'm just tired of talking about it. It's harder in real life, because you can't always pick and choose when you want to share and talk and when you don't. On the computer, I can decide when or if i want to get on and what I want to talk about, so it's easier. I know you understand. :o) Yes, I definitely know that my angel is near all of the time.