My oncologist had not gotten back to me about the referral to a neurologist. So I called my radiation oncologist (who referred me to physical therapy), but her nurse said that the referral would have to come from Dr. O. So I called the BMT clinic again, and Carla had just come from a meeting with him. She said that he had made the referral, but got a call back from the neurologist saying that he couldn't do anything to help me. He said I need to go to the pain management clinic. :o( She told me to call them on Monday to make the appointment so they would have a day or so to review my history.
I had some hope that a neurologist would be able to tell me something I could do to improve the paralysis, or at least how to live with it. But I also knew that it was very possible that nothing could be done.
I'll have to call my PT to let him know that I won't be seeing a neurologist. Maybe I can get pics of my last MRI so that he can see the mess we're dealing with (the tangled, curled up nerves). I'll also take the reports from the PT to Dr. O next week. I'm scheduled for IVIG at the BMT clinic on Thursday.
We had to go to Mom's late last night. She had packed again, and called wanting to know where everyone was. I think she thought we were going to move her. We got everything unpacked again. Ron went over today and said that she had not repacked, but was still in her night clothes at 2 in the afternoon.
I'm trying to stay upbeat, but it's not easy.