The next step in my treatment plan is to have a thing called an ommaya reservoir placed in my head. It would be used to administer chemo directly into my spinal fluid through the reservoir in my brain. Sounds awful, I know, but wow, how amazing that they can do such a thing. The procedure to put it in was to be done on Monday.
So today I had to come to BAMC to for pre-admission, which included paperwork, labs, x-ray, EKG, etc. We finally got out of here around 12:20 and went to lunch. When we got home, the hospital called and said I had to go back to the lab in the morning because my platelet count was extremely low. So low they thought there was an error. Then my doctor called and told me he wanted me to come back NOW, get another lab test, and be admitted.
The low platelet count is rather sudden, and they believe that it is from either the radiation or that the mantle cells have crowded them out. The most likely case is that it's the radiation, since they just finished irradiating my low back/spine last week. The last labs I had didn't show anything wrong. I've had some blood when I blow my nose, I've felt extremely fatigued and lightheaded, and I've had some weird bruising over the past week, and now we know why.
So, here I am, back again, in the very same room I was in a month ago. They accessed my new port for the first time today to draw blood. They will be giving me platelets as soon as it is crossed and matched.
I don't know if they will go ahead with the ommaya reservoir on Monday or not. We'll have to see how I do, and if I can keep my platelet count up.
Not sure how long I'll be here. As always, your prayers would mean so much to me. Thank you!